Showing posts with label diabetes. Show all posts
Showing posts with label diabetes. Show all posts

Thursday, 17 July 2014

#PhD journey: preparing main study #MOOC

The next big step in my PhD journey is coming up: the main study. Once September comes, I will hopefully get massive amounts of data coming my way (well, lets say massive yet controllable data would be ideal, not BIG data, rather meaningful data in manageable abundance). Rolling out a main study is more difficult than organizing the pilot study for multiple reasons: personal knowledge (by knowing more, additional reflections come to mind when planning an follow-up), getting more people to agree that I come and gather a flock of research participants, making sure all questions will lead to meaningful research...

My previous steps during my PhD journey were:
  • writing a probation report (which included my pilot study set up, some literature and rationales for the research choices I made at that point in time)
  • considering the pilot study data analysis and filtering out key findings (e.g.what influences MOOC learning, what is of importance for learning what is not, is there a difference in learning depending on online learning experience...) that were of use to my upcoming main study (I will put these into a more legible document in the upcoming weeks)
  • rewriting my central research question and following sub-questions
  • building my research instruments (which in my case are questions I will ask the research participants: keeping learning logs, engaging in interviews)
  • and of course, very important for a PhD: rationales for each step. 
Research focus
For my research I look at experienced online learners (adults in most cases), and how they self-determine their learning (this links to heutagogy, I wrote briefly about the why of this approach in an earlier post here). There are multiple reasons why I like this: relevance to lifelong learning, adult learners can be more self-determined due to their own experience or professional/personal needs, it is advanced learn-to-learn combining personal goals with digital skills with a mediation linked to critical thinking (which content do I find of interest, of all the discussions I am engaged in - who do I learn from, which argument do I feel is more to my liking...). This emphasis on experienced (adult) online learners immediately opens up the MOOC space for me, it brings it back to its first roll-outs (cfr. CCK2008) and it relates to what young as well as adult learners do in terms of 'internet use for learning': you want to find a solution for something, you connect through the internet (tools, objects, people), you surf the net, you connect with others, you make curate in your mind what is useful, and assemble the information into new knowledge (well, that is how I think it goes, but a lot needs to be investigated). An adult learner makes decisions for their learning, they make their own decisions based on their own expertise (I assume here): we all have our own agenda's, and as such we need different bits of information (chosen drops from the Internet fountain or our own networks). Of course in this learning chaos, there might also be emergent learning happening, no matter how experienced one is as a learner, and this is of course also of interest (how does it work, might it become integrated in durable learning...).

So my central research question is: "How do experienced online learners manage self-determined learning when engaged in a MOOC in order to attain their learning objectives?"

Research environment
In order to investigate this, I was looking for research participants that would be engaged in MOOCs that would attract or support that type of learning. And I wanted MOOCs that had different feels to it as well, or could attract different populations that would (possibly, hopefully). I was also looking for MOOCs that would take more than two weeks, as research shows that there is an interesting chasm in interaction between week 2 and 3 of a MOOC. And as I am part of The Open University and its partners, I have the pleasure of being able to ask MOOC organizers from different universities that are all part of FutureLearn  to see whether I have their permission to gather research participants from their MOOCs. 
The world of academics is amazing, as I got three agreements of the lead facilitators of each MOOC I was interested in (SO GRATEFUL!). I gladly share the three MOOCs here:

The Science of Medicines: learn the science behind how and why medicines work, and what can improve the patient treatment experience. This MOOC is organized by Monash University in Australia, and lead by Ian Larson. The Monash University is a leading university for pharmacy and health courses, and I really look forward to the course. I choose this course as it was health related: building on past experiences I would think a lot of health professionals might be interested in this course as it might provide extra insight into medicines and pharmacy. The course also provides support for carers and people with diseases mentioned in the course. This is an additional bonus, as my pilot study showed that health issues can be a reason to follow a MOOC. And I am a diabetic type 1 (= insuline dependent, so interested in that health part as well). 
The course starts 1 September 2014, and lasts for 6 weeks, with a 4 hourse pw study time. 

Decision Making in a Complex and Uncertain World is my second MOOC of interest. This course will teach us the first principles of complexity, uncertainty and how to make decisions in a complex world. It is organized by the University of Groningen in the Netherlands and Lex Hoogduin is the course lead. The reason for choosing this MOOC to look for research volunteers was based on its content related to complexity. For MOOC learning, and especially experienced online learning has a lot to do with dealing with complexity. As such, I thought it would be interesting, and I hope to see some parallels coming out of the content, and the learning reflections. 
The course starts 15 September 2014, lasts for 6 weeks, and has quite a hefty 6 hours per week study workload (which is of interest as well, as high expectations sometimes provides high effort return). 

Basic science: understanding experiments is a hands-on course which introduces its participants to science-based skills through simple and exciting physics, chemistry and biology experiments. It is organized by The Open University, and lead by Hazel Rymer. This MOOC offers a different learning set-up: it is more practical, as course participants are asked to try out experiments in their own home (one of which is: getting DNA !). So this might ask different learning to occur. 
The course starts on 22 September 2014, lasts for 4 weeks, and has an estimated study workload of 3 hours per week. 

Excited by the prospect of getting people on board for this research... so will post as the next steps are ready. 

Friday, 11 January 2013

Free #research papers on #mLearning from mLearn conference

Today the free proceedings of the mLearn2012 conference that was organized in Helsinki were put online. For all that want to get a peek into recent research, it is a blast! The topics are very diverse: augmented learning, health (diabetes 1 support among others), gender, learning analytics, mLearning pedagogy, language learning, learning with tablets ...
If interested you can download the full proceedings here (pdf) or you can simply scan the titles and pick those you are interested in. I will only list the full papers here, but there are also a number of posters, short papers, showcases and doctoral interests giving an update on research in the making which  you can view online here.

List of full paper topics:

Thursday, 21 June 2012

5 steps to improve my #mobile #diabetic life

Since March 2011 I am a diabetic type 1. This means that my pancreas is no longer functioning and I have to take 4 insuline shots per day (Novorapid and Lantus (glargine)).

In the past 6 month I have bought a Continued Glucose Monitor (CGM) produced by Medtronic. The CGM enables me to keep an almost real-time overview of the glucose in my blood. This is great for me, as I have a various activities (so glucose use varies) and I have a small child (now 1 year old) which makes me more aware of my child his safety. I use the CGM without an insulin pump, so I just use the monitor to keep me informed on possible hypoglycemics (low blood sugar with a risk of getting in coma when too low).

The CGM has greatly improved my ease of mind. But, as a mobile learning adapt, I feel the CGM could be improved with some simple technical and training modifications. So this blogpost is in a way a call for action from Medtronic and all CGM building companies. And the model can in itself be used as a generic mobile health (mHealth) model. How, easy in 5 steps
  1. The CGM is currently sending glucose information to a Medtronic monitor, but it would be an improvement if it would send information to a smartphone (BYOD type of development). Security might be an issue, but the CGM monitor has been hacked also, so well. Getting your blood sample info to an iPhone is already possible (see movie below), so getting CGM info to my/any smartphone is feasible.
  2. Now add to this a carbohydrate smart scale that is connected to my smartphone or other mobile device (e.g. the wireless scale in combination with iPad/iPhone). This does require a scale that has options to choose from: buttons for different carbohydrate foods and fruits to allow the scale to immediately convert the weight into the right amount of carbohydrates. This way, the mobile device can calculate the amount of insulin you will need and add the meal information to a offline/online synchronized personal database. 
  3. When the CGM sends encrypted information to a smartphone as mentioned above, additional health applications can be build. For instance one that keeps you up to date on how your glucose is changing throughout the day in relation to your food intake. For instance, which foods allow you to do a more strenuous workout, or are better at keeping your glucose stable when doing nothing (airplane, daylong meeting,etc). For this an algorithm must be build that monitors different variables and can indicate what type of food gave good results overtime (in my case brown pasta is always giving me problems, so I would love to know if it is linked to anything else). Of course there are many diabetes related apps out there already: Android based, iPhone based, other, or check out this one EndoGoddess which seems to give points for putting in your diabetes info an in exchange you can download iTunes music - interesting business support model. But these apps miss the personalized, more semantic type of algorithm.
  4. Add to this a training application to inform diabetic newbies: YouTube movies, cause and effect information, food advice, workout advice (e.g. eating olives and avocado's helps in increasing good cholesterol levels because they influence the take in of bad cholesterol in favor of the good one). 
  5. And finally, provide a newsletter URL or RSS feed that is mobile enabled. It is easy and promotes all that deliver information, so win-win situation.
So how would this improve my mobile diabetic life?
  • It saves time in putting the information of weighing food into any paper notebook or smartphone app, because the scale is connected to the smartphone.
  • I can work with the device I like to use and am comfortable with
  • It saves time in calculating, as the smartphone can immediately calculate how much insuline you need for the amount of carbohydrates you have weight in relationship to the time of day.
  • And it saves quality time as I learn continuously (or when I am willing). 
So if any of you Medtronic managers/developers would be interested, I will gladly share my ideas/tech knowledge to get this realized (no fee, just fly me to your headquarters and let the meeting begin).

For sure Medtronic is amazing at leading research to a fully closed, artificial pancreas. See for instance their latest news on the path towards an artificial pancreas in their newsroom article here.

Thanks to Domingo Liotta I am also a bit at ease about my night insulin that is glargine  (which has said to increase the cancer risk), but now three new study is out indicating that glargine would not increase the cancer risk (let's hope so, for long-term studies are still running).

And last but not least the linkup between blood level updates and iPhone.

Thursday, 19 January 2012

#mHealth a #diabetes #mobile project in DRCongo, Cambodia and the Philippines

Most of us want to make some kind of difference, making the world a better place. Josefien Van Olmen is one of these wonderful researchers at ITM that gets it done. A few months back she asked me to get involved in a diabetes project which would involve basic cell-phones. We all got our heads together (doctors, social scientists and technologists) and set up a really cool and easy to build and implement diabetes project. For those interested a quick overview of how it was set up:

Josefien drew up the medical side of things, taken into account national differences, regional challenges, medical ethics, etcetera. She is a very intelligent expert researcher and she drives her people hard but with an incredible warmth of heart. Will not link to any medical framework here, as this is part of Josefien’s work, but feel free to contact her if you want to learn more about it: Josefien’s LinkedIn page can be found here.

Needs going into the project:
  • Getting in touch with diabetes people (diabetes 1 and 2) who are living in remote areas or who have a hard time getting to their health clinics/health care workers/diabetes educators.
  • Keep the diabetes project at low cost,
  • Make use of the personal cell phones the diabetes patients have (cheap cell phones, mostly java enabled) to make them feel comfortable with the technology of the program.
  • Make it generic so other organizations in the country (or elsewhere) would be able to reproduce it for their own purposes,
  • Get people empowered to use their cell phone for practical life changing/enhancing topics.
  • Make the program strong and durable by providing patient records
  • Keep the program easy to use, so health care workers as well as users will be kept motivated to use it even in difficult times.
  • Allow the content and communications to be written or performed in different languages (French, Khmer, …).
  • Keep control of the program and the health messages.
  • Easily build health messages to send around in bulk.

Solution:
  • First of all working closely with the diabetes managers in the countries: they know their patients, the challenges for their specific regions. Getting a participative project going from the start.
  • Finding a low cost (free and open source!) solution that works with basic cell phones, offers the option to build your own reports/forms, and allows all the communication that is happening between the patients, the health care workers and the diabetes managers to be put into long lasting and transparent patient records => one solution the Frontline SMS medic solution.
  • Testing the program: the most difficult part was finding the right modem to get frontline sms to work properly (we used a Huawei gsm modem in the end, after trying quite some other types of gsm modems).
  • Getting a frontlinesms expert in to fine tune to the program’s needs. Limbanazo Kapindula was/is the man of the moment. He just finished a mHealth project in Malawi (blogpost and his presentation on the project can be found here).
Some resources
If you are interested in testing out the frontlinesms medic for your own purposes, feel free to download the frontlineSMS medic program here or check out this video and start your own project yourself or with your team.



This diabetes program is now being set up right now and will be ready for roll-out in the very near future. Josefien, you sure know how to make a difference. I know how important it is to get connected to my fellow diabetics and health care workers, thank you for your great work and the opportunity to work with you!

Thursday, 21 April 2011

Mobile Diabetic: new invention for painless blood glucose monitoring via smartphones

As I was diagnosed with diabetes type 1 a month ago, I have been reading up on some mobile solutions that are in the pipeline. So from time to time I will put in a diabetic post as it is related to health and mobile solutions.

Carlos Kiyan is one of my closest colleagues and friends. Carlos pointed me in the direction of the painless GlucoReader that monitors blood glucose levels via micro-needles (which have been tested for the flue before). Painless glucose monitoring immediately got my attention, as the glucose finger stick pricking is PAINFUL and a bit difficult to do depending on the situation (one should not do it while driving a car!).

Four engineering students got their heads together and came up with a start-up company that would allow diabetics to monitor their glucose via a micro-needle patch which sends the blood glucose level to an android and/or iphone smartphone. The transmission is done via bluetooth, which is used for other diabetic innovations as well. The start-up is located in Boston, US.

The estimated price would be around 500 - 600 USD which is somewhat affordable (I would gladly donate one to someone I know on top of the one I would be using if it would decrease the finger-prick pain. It is a US invention, so not sure if it will be available outside of the US, but ... I would fly over and get it if I could. It is still in the R&D-phase, the engineering team has only started their trial period and it will still take a year before any FDA approval (Food and Drug Administration) could get the production going, but still ... it is worthwhile following. For easy following: follow them on twitter via @mobilifeinc

Monday, 14 March 2011

Blogphilosophy: #eLearning in times of #diabetic despair

We learn for many reasons and most of the time we can plan what and when to learn, but sometimes we need to assimilate more knowledge than we had anticipated in a much shorter time span. This was what happened to me last week.
At first I did not want to share any of these experiences, but then I remembered the dictum ‘the personal is political’ and as such I reminded myself that silence never helped anyone. Diagnosed diabetic
Last week my blood glucose was completely of the charts. Where at first I thought I had a rapid functioning thyroid, it turned out to be diabetes, a late diabetes 1, which was undetected for months (hemoglobineA1c above 12) so I got rushed into hospital. Within five days I got educated in food, carbohydrates, insulin, using syringes, physical activity, possible consequences and getting to grips with something that will stay with me throughout my life. It was a hard blow and it still is.

For seven days I refused to go online. I did not want the disease to infiltrate my life, and I did not want to share what I had out of fear of no longer being seen as ‘a strong professional’. This was an absurd train of thought, for I would not think of anyone having any disease as weak, but now with me at the receiving end it did feel that way for me.
The hospital staff was supportive and they educated me day by day on how to cope with diabetes, what effects it could have, why it depended on three pillars: physical exercise, carbohydrates and insulin. Nevertheless my mind was in a constant state of blur.

Constructing knowledge in times of despair
Coping with what life throws at us is often linked to eLearning. We (or I) seek answers on the worldwide web, and in many occasions it helps us cope with the real world. Many of us have to deal with distressing health news at one time or another. For me, it came last week. First I did not want to accept the fact that I had a chronic disease (yes, I know full denial and to be honest the denial still pops up), but after the first week, I turned to the Net – real-time school – to get some answers to questions like:
  • Where can I find more information?
  • How can I find the proper information (no panic, just the facts please)
  • Where to find people in the same situation to exchange notes?
  • Are there mobile gadgets? (this I found interesting)
Diabetes: mobile and gadgets
I wanted to bring the diabetes closer to my own world. So, what were the mobile options, the gadgets? And I found some stuff that gave me hope.
First of all a native application to report my glucose and activities via my Android smartphone:
On Track:
http://www.androidzoom.com/android_applications/medical/ontrack-diabetes_lex.html

Secondly a newly released (Dutch) iPad magazine
http://itunes.apple.com/WebObjects/MZStore.woa/wa/viewSoftware?id=419603195&mt=8&affId=1380330

And I wondered, is there a system that can monitor your blood glucose ‘life’, and depending on this figure can inject the correct amount of insulin on a regular basis?
Well, it seems there is, but still in a very early stages (nevertheless it does give me hope that there will be a fully tested device soon that will be able to monitor all – nano technology might help out as well).
http://www.medtronic.com/your-health/diabetes/device/insulin-pumps/paradigm-pump/

It is weird to see that diabetic is a mobile disease, for which you use mobile gadgets to keep up with it.
All of this learning would not have been possible ten years ago. Or at least it would not have been as easy. Unfortunately though, learning only nourishes the ratio, and not the emotions. It must be said that learning is a rational act, and where we place our knowledge is a moral, emotional act which often takes more time than the simple picking up of information. To illustrate the discrepancy between learning and living what is learned, I add the last bit of this blogpost.

The roller-coaster of a chronic disease
At the moment I am still not feeling very well. It is like the proverbial emotional roller-coaster. I understand that with the insulin I will live longer, but the uncertainty of having to rely on something outside of my body is difficult at times.

I got home by Friday night, and the first time I needed to put in insulin at home was quite confrontational, as suddenly also my 'safe world' was invaded, not only the surrealistic hospital world.
I felt like I had stepped through a looking glass and I could not return to the world of the healthy people. It really feels as if I am on the other side surrounded by people in similar conditions.

All along I felt a strange kind of guild: what if I had..., what if I had not..., ... how strange to seek a moral cause where morals do not have anything to do with it.

Diabetes can bring along some scary complications as well. My legs are hurting since I came out of hospital, which makes me feel very insecure for this might be a complication already. At this point I still hope the pain will fade as the surmount of sugar leaves my body. I hope this is not the first symptom of neuropathy (which scares the hell out of me).

It seems that today I am also fighting, I have danced for 15 minutes to underline the fact that I refuse to live without action. It is strange to feel how my mind is rushing through iterations of emotions in an attempt to find a new equilibrium.

And once again learning is what keeps me going.